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September
22, 2006 - Steve Rowe
Hi.
It's me again (scroll down to last years stories). It's a year
later now, and this time I made it through my training and arrived
at the starting line healthy! I ran just a bit better than my
goal pace for 18-19 miles, then things started changing. The right-leg
IT Band started acting up (this was the cause of my aborted attempt
last year). Then my calf muscles starting cramping badly, and
I was losing energy. I started walking through the all water stops
after mile 22, but doing the math, I thought I could still make
my goal time. But then I had to stop several times to stretch
those calves, and the walking breaks were becoming more frequent.
After finishing, I felt weak and light-headed, and spent over
an hour in the medic tent cooling down and hyrdrating, while my
blood-pressure stabilized, and fighting off those leg cramps.
Kudos to the great people at the medic tents, and to all the great
volunteers who helped out today!!!
Ultimately, I missed my goal
time ( which was sub-4 hours) by a mere 6 mins, 48 secs. However,
I absolutely blew up my one and only other marathon time by 62
minutes! So, I'm psyched about that. Considering everything, I'd
call it a successful marathon.
- Steve

September 12, 2006 - Drew D. Saur
In
2003, I began a comprehensive effort to lose weight. In January
of that year, I was 325 pounds, and was tremendously out of shape.
Over the bulk of 2003, I lost 100 pounds - first by counting calories,
and then through walking and, ultimately, running. By mid-2004,
I had lost over
150 pounds and was running regularly, just to keep my weight off
and to stay healthy.
(The National Weight Control Registry at Brown University is currently
tracking my weight loss story: http://www.nwcr.ws/stories.htm)
During my first year of weight loss, my initial walking (5 miles,
once per week) turned into short distance running, which turned
into 5Ks, 10Ks, 15Ks, 10 milers and, ultimately, half-marathons.
Today, I enjoy running all of these distances, to challenge myself
and to stay healthy. However, I have not yet run in a competitive
event.
I had planned last year to run in the inaugural Rochester event,
but a mid-summer medical checkup uncovered a large tumor (initially
believed to be malignant) in my right kidney. As a result, I had
to have my right kidney removed. Luckily, the tumor was benign....but
throughout my wait for surgery - and within a month afterward
- my doctors told me to keep running, and that my running would
play a big role in a quick and thorough recovery. Indeed, it did.
I was lucky to get healthy just in time for that surgery!
Alas, I wasn't in the shape I wanted to be last September, so
I elected not to run. But this year, I am happy to be running
my first "official" half marathon, after having lost
over 165 pounds since 2003! I am proud to have made the change
from obesity to athletic fitness, and am very much looking forward
to my first competitive run.
- Drew

September 12, 2006 - Carl Evans
I have been a runner for 26 years and completed
my 20th painful marathon at the 2004 Ontario Shore Marathon at
Hamlin Beach. My goal was to run 20 marathons before I needed
to quit as I had a severe case of OA. After 3 arthroscopic surgeries
by a Doctor that knew I was serious about my goal, I did make
my 20th marathon but that was the end of running almost immediately
after.
As my OA got progressively worse, to the point that I could hardly
walk or move at times, I had my knees replaced in 2005, the first
on April 19th and the other on September 20th.
So now almost a year to the date I find myself never being able
to run again but I am going to walk – and finish –
the half marathon on Sept. 17th!
What a great day that will be as a year ago I thought it would
never be possible.
That’s it,
A short story with a happy ending,
- Carl Evans, Always a marathoner

September 18, 2005 - Ron Cunningham
I
woke up at 4:30 a.m. Saturday morning and checked the weather.
It was in the fifties and drizzling. Perfect. I had slept six
and a half hours. Pat was concerned about us having plenty of
time to get to the event, and suggested leaving by 5:30. We watched
Nowhere In Africa on DVD Friday night, but it was over two hours
long, so I packed it in about ten with an hour left to watch.
Excellent film.
I put on my running clothes, gathered up some clothes to change
into, had a glass of orange juice and we were ready to go. The
excitement was building. A misty rain filled the pre-dawn darkness
as we motored toward the Geneva Thruway entrance. Another hour
and I’d be on that unimaginable starting line. I felt confident
that we would get to where we needed to be, because I had the
directions.
I was reading the wrong directions. We ended up at the Clarion
Hotel. We were supposed to go to Frontier Field, where I would
pick up the race packet and get the timing chip. I needed a restroom
desperately. I could feel the anxious near-panic rising; it was
after seven, and the packet pick-up closed at seven-thirty, but
I took advantage of the hotel’s men’s room. Now I
could think. We were definitely close; I saw lots of people who
looked and dressed as if they were going to run, but the line
to the desk was too long. I wouldn’t be able to get information
quickly enough. I went back to the car and checked the directions
sheet again. D’oh! Directions for Frontier Field were on
the flip side. Nice going, Brain Cell.
Shivering in the cool, gray damp inside the stadium mezzanine,
I looked around for the place where I could pick up my race packet.
Hundreds of people were milling around; the pickup areas for the
packet and timing chip were poorly marked and in separate places.
After parking the car, Pat found me as I shuffled slowly forward
in the line to get the timer. It looked like a house arrest ankle
bracelet and was being passed out by a woman who barked the instructions
like a concentration camp guard. “Easy, easy!” I said,
and several people chuckled, knowingly. She was definitely in
need of some calming herbal tea.
We took the stuff back to the car. I put on the long sleeved event
souvenir shirt for warmth. I asked Pat if she was going to go
to the starting line, but she said there’d be too many people.
I guessed she was just going to read in the car. She wished me
luck and I took off the event shirt. I made my way to the men’s
room and then the starting line. As I warmed up by walking around
a small city block by the starting line, I saw that it wasn’t
that crowded. I went back to the car to try to persuade my companion
to see me off. She wasn’t there. It was time to go, so I
jogged back to the line.
The temperature was fifty-nine degrees when the horn marked the
beginning of my longest journey on foot. The 2005 Inaugural Rochester
Marathon had begun! Seventeen hundred people slowly accelerated
from a walk into a jog past the banner where our timing chips
would mark the first second of our run. Not two hundred yards
into the race, two men in the middle of the pack did an inexplicable
about-face and began running against the current of moving bodies.
I thought of the warnings in the instruction packet against stopping
suddenly, or making unexpected lateral movements. They made their
way through unscathed, at least in the range of my hearing, which
now picked up anecdotes of bloody incidents in other races. I
stayed alert for potholes, as recommended in the race instructions.
Three days’ rest found my legs strong and pain-free as downtown
Rochester moved by slowly at the periphery. Chatter cropped up
around me, but I was silent. I was saving every ounce of energy
I had for this run. I was determined, but by no means 100% convinced
I would finish. I regulated my breathing cadence. A wide spectrum
of body types moved around me. How many were just running the
relays? How many were only here for the half marathon? How many
would finish the entire 26.2 miles?
About five miles out, a man in green shorts came flying by on
the left as the marshals shouted for everyone to stay to the right.
The half marathon leader, no doubt. It’s silly, but for
a few moments I wondered if it could have been the full marathon
front-runner. I almost made the wrong turn at the half way point,
and did a little dance of indecision while shouting to a marshal,
“Full marathon! Full marathon!” They got me back on
track, and I paced on, breathing strong and thanking goodness
that the cloud cover and drizzle held steady on my fully warmed
up body. One of the course officials complained of being cold
as I ran by.
My name was now my bib number, 141. “Looking good, 141!
Good job 141! Nice running 141!” the onlookers cheered.
The spectators were most densely concentrated around the refreshment
tables, spaced every two miles. “Run, Amy Jo, Run!”
said signs every so often. I predicted some sore hands the next
day from clapping out encouragement. I planned to wait until mile
twelve to hit the Gatorade and power gel. I refueled at ten during
training.
The course had been mostly downhill until we hit Pittsford, where
I saw the entrance to Nazareth College of Rochester, which I attended
in 1975. Soon after, we were shunted onto some docks, and then
were running next to the Erie Canal on a gravel path. The whole
feel of the race switched gears. The city streets had given way
to a narrow path with water on the right and woods on the left.
Cheering groups of well-wishers were few and far between, and
the lay of the land was absolutely flat. The middle grind kicked
in. At this point I became familiar with several runners whom
I would see on and off until the end.
At mile twelve, I stopped to hydrate and get some power gel, a
kind of twenty-first century food-fuel offered every so often.
I stopped to consume the liquid. Trying to drink from a cup while
running can be counterproductive, especially if it results in
choking on inhaled liquid. I’d sacrifice a few seconds against
my goal of four hours to not have the disrupting jostled drinking
attempt. I got the sports drink down and resumed running. I began
working on the power gel in its foil package with a narrow neck
through which the raspberry cream-flavored goo came out and filled
my mouth.
I don’t know whether it was the stopping or the eating and
drinking, but I started to feel lousy. My legs began to get heavy
and my stomach seemed surprised to be asked to do its job after
such a nice rest. The running became increasingly difficult. I
was carrying two packets of the gel, and every portion was increasingly
unappealing. I guess I should have trained for it. The sun came
out. I was getting concerned that I was in for a rude awakening.
The run had been very pleasant up until then. After mile fourteen,
the drudgery of the canal run, with its brown water, flat gravelly
footing and the occasional jogger going the other way, ended.
We now had been corralled into a little park with hundreds of
people cheering, holding up signs and offering refreshment. We
ran up a little hill out of the park and onto a bridge that led
into the village of Fairport. A legless man in a modified wheelchair
struggled beside me. He got up on the bridge and kept pace with
me for a while through the quiet village streets. Traffic jams
were now the norm everywhere we went, with long lines of cars
on the other side of bright orange traffic cones. Some in the
cars cheered. Some sneered in their impatience. The turnaround
in Fairport commenced the return to the center of Rochester.
I was still holding the last packet of the power gel in my left
hand as I headed toward East Rochester and mile eighteen, where
I’d originally planned to take and consume the second pack.
The terrain was up and down now, with more and more people walking,
then running, then walking; passing me, dropping behind me. My
pace was slowing, and I still hadn’t really recovered from
my first stop six miles back. When I got to East Rochester, I
got a couple of cups of drink at mile eighteen. As I started back
up, I struggled to tear the gel pack open with my teeth. It was
stubborn and, of course, burst open when I didn’t expect
it. My hands were now sticky.
The incline was now about five degrees uphill. As I neared mile
twenty, my previous longest distance run, I was struggling against
gravity. I was going through all the motions of running, but I
was nearly unable to catch up to people who were walking in front
of me. I had seen the course profile on the website. It was all
uphill between twenty and twenty-five. I was still hoping for
relief. Now I was seeing the same people, over and over, passing
me, stopping to walk, passing me, stopping to walk. “Well,”
I thought, “at least I'm able to keep running.”
I probably shouldn't have even thought it.
Mile twenty-two was the last stop for liquid and gel. I had been
going uphill for at least two miles and I started walking as we
went under the intersection overpass of interstate routes 390
and 590. Back apiece, I had passed a group of five men and women
running together all in the same t-shirts. But now they went by
me as I struggled up the desolate thoroughfare of the blocked-off
four-lane that crossed the Rochester city limits. The refreshment
tables were just ahead. If I could only make it there, I’d
get some more energy. I was in agony as I plodded along, wondering
if I could get started again. A tall, thin septuagenarian with
yellow-white hair now passed me going up the hill, as I’d
passed him on others. As I took my last drinks of the race, I
could feel my body shutting down. This was the longest I’d
ever gone on foot, and my body was in a strange and excruciating
rebellion.
Still going uphill, trying to re-start my running, I entered mile
twenty-three. As I turned left onto the street that would in only
3.2 miles lead me to the end of this suffering, all my faculties
were collapsing. I began groaning in agony, caught in a tug-of-war
between my will to finish and my instinct to preserve myself.
Every step was slower than the first. I was having that peculiar
nightmare effect of running away from something but unable to
make any progress. As I trudged through residential streets, I
dreaded having to walk for another hour. It would surely take
me that long at this pace. In spite of my present condition, I
refused to concede to the strong desire to give up. People along
the way lent encouragement: “Mile 23’s at Culver,
a quarter mile away! It flattens out after that!” “
Keep going, you’re almost there!”
With a grimace on my face and involuntary moans erupting from
my gut with every breath, it was all I could do to continue. As
I approached mile twenty-three, the street still didn’t
look any flatter. My hopes for even finishing, much less breaking
my goal of four hours were dwindling. As I passed a group of twenty-something
males, one called out, “You’re in the LEAD!”
As their laughter faded behind me, something clicked inside me.
I started running.
All the groaning and gnashing of teeth had stopped. My face went
calm. My breathing was easy and regular. The pain in my legs was
still there, but it no longer controlled my thoughts. I just moved
along, slowly, but in relative ease. I had 3.2 miles to go, and
I knew I was going to make it. The course flattened out. The sun
was shining, but the air was cool. I passed a couple walking a
huge, furry dog. It suddenly lunged and snarled ferociously. It
was focused on another dog across the street, not me, but I was
grateful for any startled adrenaline I could get. I was getting
closer to the welcoming high-rise arms of Downtown.
Mile twenty-five, and I’m home free! I tried to ignore the
cop drinking beautiful, bottled water next to his cruiser. As
I turned right off Broad onto Allen, I could hear the announcer
at the stadium. Just a couple of blocks left to go. A policeman
(who reminded me of Al Chmura), blocking an intersection with
his prowler, said as I approached, “I want you to dust that
group of four up there ahead of you!” I had been behind
them for at least a mile now. I had been unable to pass them,
even when one of them had to stop with leg cramps. A tall guy
in a gray shirt was behind the group. He’d passed me when
I was walking and had been in front of me now for several miles.
Incredibly, at the cop’s prodding, I actually jumped up
and accelerated toward the group, who were at least fifty yards
in front of me on a down slope. The surge lasted about ten seconds.
To blazes with that group! I just had to make it around one more
corner and I’d be done. At the corner, an enthusiastic voice
told me to keep going; you’re almost there! I wondered if
Miss Pat was going to see me cross the finish line. The day was
now bright and sunny, and I had run a complete marathon. How I
hoped she would share that with me! At least I thought I’d
completed the marathon; I now had to run around nearly the entire
outer perimeter of the stadium to enter and cross the finish line.
This last segment seemed to take forever. I was so close, and
yet I was being guided around those ubiquitous orange cones through
a desolate back corridor of the arena that seemed endless.
Finally, I emerged through an entrance in the right field corner
of the baseball diamond. An official warned me about the softness
of the red gravel warning track that hugged the outfield fence.
I still had to circumnavigate the entire field to reach the inflatable
finish line set up between third and home plate. I was alone.
I watched the group of four and the gray-shirt-guy go through
the final gate across the field ahead of me. I rounded the left
field turn, looking into the stands for any sign of my wife. As
I crossed the finish line, I still hadn’t seen her. The
clock read 4:25:58, and I put on a brave face for the camera.
I’d done it!
An official stopped me and removed my timer chip. A smiling young
woman handed me a very heavy medallion on a yellow ribbon, my
victory medal. The sounds of the surprisingly sparse crowd swirled
in my ears as my body began its descent into true and complete
exhaustion. I saw runners stretching and recovering inside a barrier
fence and on the grassy infield. There were only a few of them,
and though I wanted to join them, in my fog I decided to just
look for an exit. This required going up stairs. Argh! I needed
to keep walking, I thought, so my body didn’t turn into
one giant cramp. They’d have to pry me back open with a
crow bar. My right calf had started cramping at about mile twenty-two.
Now both calves were refusing to function, and my steps were getting
shorter and shorter. Where was that confounded exit?
I finally got through one of the openings to the mezzanine, and
what I saw next brought sweet tears to my eyes. Joyfully waving
arms framed that famous smile I’ve known for over thirty
years. My wife Pat was rejoicing in the completion of one of the
most astonishing feats of my life. The beautiful melody of a Ruthie
Foster gospel-folk song was playing in my head, the soundtrack
for our reunion. I was wearing my medal. It was all I could do
to keep from breaking down and blubbering.
You have to keep moving,” Pat said, and we wandered through
the milling crowd, every step more difficult than the first. I
was bent over and walking like the Tim Conway old man character
on the old Carol Burnett Show. My stride couldn’t have been
more than six inches long. I tried lying down on a picnic bench
and elevating my legs, a technique Pat suggested while I was training
that seemed to work pretty well. As I raised and lowered my legs,
oh-so slowly and painfully, she told me she was the voice at the
corner that shouted keep going; you’re almost there! She
was laughing because I hadn’t seen her yelling and waving
her arms, not ten feet away. She had heard me say to a group of
people on my left, “God, it hurts!” at which they
all tittered. She said she’d seen me at the starting line,
too. Aren’t I observant?
I got up, and we started off to find something to drink. Tim Horton’s
had a booth at which they were giving away fruit juice, and I
got there just before they closed. The man under the banner handed
me an apple juice and said, “Congrots.” I noted the
interesting pronunciation. I sat for a bit and sipped, but we
decided I should keep moving for a while. Pat was very amused,
because now it was I who was the slower of us two, and I was getting
my just desserts for making fun of her pace when we go shopping.
I was a virtual cripple. We were looking at one of the number
of chiropractic and massage areas, offered gratis to participants,
when a woman said, “If you sign up, they’ll fix you.”
I mumbled something incoherent. Pat took the sign-up clipboard
and filled in my particulars for me. I was leaning on a table,
completely unable to function, moaning.
It was only half an eternity before I was called in. A young,
good-looking guy in his twenties, a student getting some practice,
introduced himself and went to work on me. Pat derided me for
letting out a huge “OH!” when the kid popped my back
back into place. She said I was over-dramatizing; she’d
had that done a thousand times after her back injury. I weakly
reminded her that she hadn’t run over twenty-six miles before
having it done. I felt a little better after some deep-tissue
calf massage; we thanked Matt and moved (slowly) away from the
operating room. I was getting cold. As we opened up the car, the
sun-warmed air that flowed out felt marvelous. A woman along the
way to the car told me I’d looked good out there; she’d
seen me. I told her I wasn’t looking so good now. But I
was feeling superb. Mentally. I changed into dry clothes, dropped
slowly and painfully into the front seat, and as we drove away,
I smiled, replaying the whole race again in my mind. I had been
changed, significantly, forever.
- Ron Cunningham

Sunday, September 18,
2005 - Megan Clark
I am writing to tell you the story of a runner
in the September 17 th Rochester half-marathon. Megan Clark, my
daughter, is currently a freshman at Nazareth College. Running
the marathon was a personal victory for Megan. She discovered
the joy of running in her junior year of high school when she
joined the cross country team at Wheatland-Chili Senior High.
When she returned to the sport the following autumn, she suffered
what was then believed to be a muscle injury early in the season.
She continued to cheer on her team while attending practices in
a modified form, riding a mountain bike, swimming to regain muscle
strength, and eventually running a mile at a time. Through the
pain, Meg persevered. However in November it was discovered that
her hip was actually fractured and she was inches away from a
life-changing experience. Dr. Goldblatt of University Sports Medicine
saved her life with his expert care. With three pins in her hip,
Meg worked all winter to prepare for the track season in March.
She was ready when Wheatland-Chili's first track team took to
the practice field, an oval painted in the schoolyard since there
was no track in place. Meg set herself a personal goal of running
the Rochester half-marathon, an event prior to her one-year anniversary
date of surgery. She and her dad ran side by side through the
summer, training, healing, and growing strong. On Saturday, they
finished the half-marathon together, an important milestone for
Megan and our entire family. Meg placed first in her age group
and first in the eyes of those who watched her pursue her goal
with determination and courage. Thank you for continuing the tradition
of the Rochester Marathon. I am sure its heroes are many.
- Wendy Clark

September
18, 2005 - Bob Fagioli
My
name is Bob Fagioli and I have never run in a full Marathon but
I have been running on and off for many years. A few years back
I decided to run more consistently and flirted with the idea of
running a full marathon but knew it was take a huge effort to
get ready for it. In June of this year I decided to get serious
about training in hopes to run the Rochester Marathon. I increased
my weekly duration and frequency quite a bit and ran some very
long runs on the weekends. My goal from the start was simply to
finish the race and if I happened to cross the finish line in
less then 5 hours 30 minutes all the better. About four weeks
ago I started to have some serious doubts
that I was capable of doing this. Then something happened. Three
weeks ago my Dad quietly passed away in his home with my Mom at
his side. His long struggle with Alzheimer's Disease was over.
My Dad was wonderful man and I loved him dearly. He loved the
outdoors and was an occasional runner. When I was a child I recall
him saying that he would run a marathon some day - he never did.
At his funeral I decided that I would have no more doubts about
myself and my capabilities. I am running the full Rochester Marathon
and if you happen to come across me on the course and it appears
I'm muttering to myself - not to worry I'm simply having a quiet
chat with my Dad because I know he'll be at my side the whole
way.
That's my story. Thanks for listening.
- Bob Fagioli

September
18, 2005 - Steve Rowe
I'm
not running in the Rochester Marathon this year. Instead, I am
volunteering as a course marshal. But it didn't start out that
way. I trained all summer long to run a PR on September 17th,
right here in Rochester, but a knee injury dashed those hopes
just 4 weeks from race day. I am disappointed, of course. After
putting in all the work to prepare, and I was ready, only to be
sidelined - it seems a shame. I am back running again now, but
not quite ready for that PR run. But I decided that I can still
participate in a different way, by volunteering. Perhaps I can
help someone else to reach their PR goal. My time will come later.
- Steve Rowe, Course Marshal volunteer

May 13, 2005
- Scott E. Lewis
I
listened with envy in February 2004 as Kelly Hursh shared excitedly
about training for her first marathon, (the Ontario Shore Marathon)
and thought, “I want to do that”. My heart started
to beat with excitement just at the thought. With only 9 weeks
to prepare, I asked co-worker Rauni English (a Hawaii Iron Man
Finisher) if it was too late to consider. The look on her face
preceded her words, ”Well... you might consider the half,
but you need to be serious, you’re right at the cut off
point”.
Having never run over 13 miles at one time, and no more than 6
every other week lately, I started with 1½ miles every
day, 6 on the weekend, more short stuff the next week, and quickly
caught up to a program called “Randy’s Favorite Marathon
Schedule”. This, and other inspiring and helpful articles
were linked to OSM web site. When signing up for OSM I found it
was held May 1st, my 50th birthday!, (also my wife Esther's 50th
birthday, which is a different story, the important thing being
she's my best supporter and was happy to celebrate this way).
God is good. The training progressed well, and my target finish
time changed from 5 hours, to 4 ½, to a hopeful sub 4.
I finished in 3:59:08. (Oh yeah... against sound advice, I opted
for the full marathon.)
The Wineglass Marathon starts in Bath, N.Y. (near mom) and finishes
in Corning (yes, New York, but not so near mom) and was held on
October 3rd. If I could finish a marathon with 9 weeks training,
what could be accomplished with proper training? On a perfectly
beautiful fall day and ideal temperatures, I qualified for Boston
with over 10 minutes to spare! (OK... 3:23:58.)
“Coach” Rauni encouraged me to come for Saturday morning
runs with the Oven Door Runners. Meeting and becoming friends
with so many great people in this group has been the highlight
of my running experience. The winter 2004 Freezeroo Series races
were also a good way to meet other runners and an excellent supplement
to fuel my training for Boston. Improvements were coming fast.
Boston was tough. Warm weather (great for spectator's, not so
great for running), excitement, and in-experience led to too fast
a start, an early “bonk”, and difficult finish. The
race itself though was awesome. Having family with me and friends
at home monitoring my progress on-line was a great support and
made it very special.
God's goodness touched my heart to the point of tear's many times
over the year, (hey, I'm an emotional guy, OK?). I couldn't have
dreamed that just over one year ago I would complete my first
marathon at age 50, qualify for, and run the Boston Marathon,
and be blessed with so many friends and supporters. This has been
my “Year Of Jubilee” (see Leviticus 25: 8-55), a year
of restoration, freedom, renewal, and celebration of God's goodness
to me.
The Rochester Marathon scheduled September 17, 2005 is the day
before my brother Gary's 50th birthday. I plan to run to honor
him in a way that has meant so much to me.
- Scott E. Lewis

Julie Mitchell
I
am a local Rochesterian living with arthritis. I was diagnosed
just after my first birthday with juvenile rheumatoid arthritis.
I am now thirty-five years old and an English educator in the
area. I am one of the lucky ones. I was supposed to be crippled
but have lived basically with just flare-ups and chunks of time
on anti-inflammatory medication.
Following my first birthday in Northern New
York, I was stung by a bee. The swelling in my ankle refused to
cease, and I was transformed into a very irritable infant. After
many tests, my family doctor, Dr. Bernard Musselman, diagnosed
juvenile rheumatoid arthritis, and he advised my parents to seek
treatment at Upstate Medical Center in Syracuse, NY.
The terms of doctors under Dr. Hannan in
Syracuse as well as our family doctor were honest with my parents
about the two extreme scenarios for my future: a wheelchair or
the possibility I would outgrow the disease. I cannot imagine
what my parents must have been experiencing emotionally and spiritually.
All I ever remember is their positive energy and support. I never
once remember tears or fear or different expectations for me.
I credit this to their immense strength and love. I do also know
that the doctors, in particular, Dr. Musselman, were extremely
helpful and supportive when my parents were in such need.
So, the following eight years of my young
life involved sixteen baby aspirin a day, a time on steroids,
nightly exercises, and monthly trips to Syracuse – a mere
three hour drive – for blood work and strength tests. During
the early part of this period, in particular, my mother has described
me as docile. During the early part of this period, in particular,
my mother has described me as docile. For a time, she would have
to help me into a chair when I wanted to read, for instance. My
knees would not straighten for full range of motion and my left
thumb began to cripple.
As I grew, I became more aware of this disease
we call arthritis as I began to absorb the visuals I experienced
while visiting the Pediatric Arthritis Clinic so often. I became
more attentive to those children like me in the waiting room.
I looked beyond the band-aids with smiley faces after blood work,
the walks for the doctors trying with all my might to keep my
knees straight, and the neat squeeze-pressure tests with my hands
as I hoped I could make that little metal ball rise to the top
of the apparatus. I began to understand that I very well could
become ravaged by this disease as so many of them. I, luckily,
was the one who stood out in this crowd. I was not like them …..
yet.
Thankfully, with my amazingly positive parents
and their energy, brilliant doctors, and the grace of God, I WALKED
into the future in remission. I know my parents and my sister
still continued to make sacrifices and were always – though
in an unobtrusive and subtle manner – mindful of the disease.
We did not take camping trips, for instance, as the damp ground
could spark a flare-up or least discomfort for me. There was always
encouragement regarding my interests in school that were not related
to sports, also. Life happened; the arthritis became a chapter
not the whole story.
There were, of course, bouts of pain and
struggle. I remember my knees, in particular, waking me from sleep
numerous times “on fie.” I would have to call for
my parents to bring me aspirin and water. It was excruciating!
Then, in my senior year of high school, as a teenager will be,
I was relentless in my quest with my parents for permission to
try martial arts. A couple of weeks into my practice, I hyper-extended
my knee and ended up having arthroscopic surgery to remove torn
cartilage. Thus began another eight year period of an arthritis
attack. Physical therapy, medication, and trips back to Syracuse
all throughout college and a bit into the start of my professional
life were the reality. It wasn’t easy with arthritis as
a roommate in college, if you will, especially being away from
home. I remember times of overwhelming emotional strain as I could
barely walk up the stairs to class or to visit good friends. I
would stop and remember how my parents must have pushed through
the hurt, and I would recall the crippled bodies of infants in
the waiting room at Upstate Medical Center. I had to fight on
for them, too.
Again, remission was finally realized, and
arthritis became yet another chapter not the turning point. I
have now been at a sedrate level of zero for about ten years.
I teach high school English at Fairport High School; I walk, lift
light weights, and enjoy yoga, Pilates, and aqua aerobics; and
I was recently married. Life goes on with arthritis. I don’t
have to remember the disease each day, but I am often reminded
of its presence if my diet changes, my sleep is deprived, the
weather changes, or I try to push my body too much. So my attitude
simply has to involve a bit of pampering for myself. I must keep
moving, but I also have to know when to stop and perhaps enjoy
a warm bath … and a prayer.
If children are in the future for my husband
and me, I know the arthritis will be a consideration. With my
parents and family, my doctors, and my husband as my support system,
perhaps the turning point can involve a continuation of remission
even through childbirth.
I walk on this marathon course for so many.
I walk first and foremost for my family and their steadfast and
positive energy and spirituality. I walk for the nights they helped
calm the “fire” in my joints, for the countless trips
to Syracuse for treatment, and for the floods or tears I never
saw. I walk for those I met in the waiting rooms whose crippled
bodies I must now carry because I can. I walk for public awareness
and education and plead for continued research. I walk for the
future for me and my loving husband. I walk because the grace
of God has allowed me to keep moving. I walk on a marathon course
in my own community for LIFE with and eventually after arthritis!
- Julie Mitchell

Kate Latas
Thanks
for this opportunity to tell my story. I am running the
marathon relay to honor my friend, Mary Wojnowski. Mary
and I met when we were 12 years old and she is the first
"real best friend" I had ever had. Mary
was always an athlete, she ran track and played soccer in high
school. She was the kind of person who thought about exercise
and being healthy, even during our college "hey day"
when being 20 years old made you feel invincible. Mary continued
on a healthy lifestyle, and has been running several
5K races per year.
Last September a mysterious bump appeared
under her jaw. Everybody said the same thing, I'm sure it's
nothing, but you better get it checked out "just in case".
Turns out the "just in case" was more than that.
In October 2004 at the age of 37, Mary was diagnosed with
non Hodgkin's Lymphoma. I remember the day she called and
said "i'ts cancer". The next words out of her
mouth were "what about my girls". Her main concern
was not about herself , but her three daughters (at the time,
ages 7, 5,and 3).
True to Mary's grit and determination, she
looked at cancer as a mere bump in the road. She endured
6 sessions of chemo and though she responded exceptionally to
the treatments, they were very difficult on her. The hardest
days were the day of, and the day after, the treatments.
I called her everyday on "the day of" the treatments,
and by number four, she confided "I could see how people
could quit chemo". But I couldn't blame her, she
is a working mother with a husband and three young children.
And although she had an extensive support system and continued
to work through her treatments, they really took a toll
on her energy level.
It was then that I decided to start running
to show my support for Mary and her determination to beat this
disease. I trained in secret, hoping to tell her about my
plans to run all the 5K's she ran when I accompanied
her to her 6th (and FINAL) chemo treatment. Ironic
thing, about a week before the final treatment, when my "big
secret" would be revealed she told me she was going to run
a marathon. I was surprised but not shocked. She told me
about how inspired she was by fellow cancer survivor, Lance
Armstrong. Suddenly my ability to train and compete (well,
complete anyway) 3.1 miles seemed insignificant. Mary
finished her chemo treatment in March 2005, and started training
for the Rochester Marathon.
When I finally told Mary of my plans, she
was speechless. She was genuinely moved by my efforts.
All the while, I felt a little silly. Here she was pushing
herself beyond her limits and she was impressed by my desire to
find a way to honor her. When I ran my first 5K on Mother's
Day she was waiting for me at the finish line (she had finished
5 minutes before me, of course) to cheer me on, with
tears in her eyes. She would send me inspiration emails
the next day, with our race times. Encouraging me to make
the next time, my "personal best". She even surprised
me by showing up for the ALS Father's Day 5K (she ran a different race
two days prior) just to cheer me on. She kept saying, "you
are really getting into this running thing". And I
told her it was for her; she endured chemo, was training and pushing
herself to run a marathon the very least I could do is run 3.1
miles.
It was a few weeks after that race her sister,
Tina, came up with the idea to run the relay marathon.
Tina has been one of Mary's closest friends and loves the way
Mary pushes her. Tina started running the 5K's with Mary
about a year before I did. At first, I was concerned
that while I could run a 5K, between 6 and 7 miles would be a
different story. Then I came to understand Mary actually
needed some pacing help to run the whole 26.2 miles. She
was accustomed to running shorter distances fast, but the
longer runs would require her to slow down, which is not exactly
a familiar feeling for her. So I have been training to run
a leg of the relay, and if I ever feel like quitting, I remember
that my dearest friend endured chemo and just 11 short months
after being diagnosed with one of the deadliest forms of cancer
she plans to run a marathon, and for me to be at her side, is
an honor that I will never forget.
- Kate Latas
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